Congenital anomalies annual reports

The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) is a comprehensive registration service that collects and quality assures data on congenital anomalies and rare diseases in England.

These publications contain information on congenital anomalies in babies delivered in England. It includes key findings, spreadsheet tables with more detailed estimates and a methodology document

Key information

1. These files may not be suitable for users of assistive technology. Please contact us to request an accessible format.
2. In October 2021 the National Disease Registration Service (NDRS) transitioned to NHS Digital and then in January 2023 to NHS England.

In April 2025, NCARDRS turned 10 years old, and with this report, provides national data for the 5th consecutive year. In a decade, congenital condition registration coverage has increased from 22% of births in England in 2015 to providing national coverage for over 5 years.

This publication, the eighth annual congenital condition statistics report released by NCARDRS, part of NDRS in NHS England, contains information on congenital conditions detected in babies delivered in England between 1 January and 31 December 2022.

In this report, data are also presented according to Integrated Care Boards (ICBs) to provide more geographically granular data. 

View the 2022 congenital anomaly statistics report on the NHS Digital website

All previous annual reports (2015 - 2021) can viewed via the links and downloads below.

Please note these reports refer to Public Health England (PHE) which no longer exists.