NDRS wins British Data Award The National Disease Registration Service (NDRS) wins the 'Healthcare Organisation of the Year' category at the British Data Wards 2026.
NEW Blog - Transforming data into action for rare and congenital conditions Sarah Stevens and Steven Hardy celebrate 10 years of the National Congenital Conditions and Rare Disease Registration Service (NCARDRS).
The National Inherited Cancer Predisposition Register Find out more about the National Inherited Cancer Predisposition Register (NICPR), a genetic data service managed by the National Disease Registration Service (NDRS)
Staging completeness dashboard Explore a new dashboard reporting completeness of staging data for cases discussed at multidisciplinary teams (MDTs) submitted by NHS trusts to the National Disease Registration Service (NDRS).
Events Welcome to National Disease Registration Service (NDRS) events area. Find out where you are likely to see us over the coming months and read all about our events.
Webinars We often host webinars which are available to all. Information about future webinars will be published on the events page.
Data stories Data stories show how the National Disease Registration Service (NDRS) uses patient information to improve diagnosis and treatment of cancer, rare diseases and congenital anomalies.
NDRS outputs catalogue The National Disease Registration Service (NDRS) outputs catalogue provides a list of our regular outputs, how often they are published and how they can be accessed.
Newsletter The National Disease Registration Service sends out a monthly newsletter with the latest updates about data releases, publications and events.
Scientific journal library All journal publications have been collated and are now available in a single, interactive and searchable table. This resource lists the numerous scientific journal publications produced by the National Disease Registration Service (NDRS) and demonstrates how we utilise patient data.
