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Guidance

Baby carries a gene for unusual haemoglobin: description in brief

Information for parents of babies who carry a gene for unusual haemoglobin.

Updates to this page

From:
NHS England
Published:
1 January 2010
Last updated:
24 June 2025
Show all updates

  1. Changed content type to guidance.

  2. Updated NHS England contact information. Removed 'for print' files as these can be printed from the HTML versions

  3. Added plain A4 PDF versions for printing, to provide for people unable to access this information online.

  4. Public information leaflet updated in accessible format with separate HTML attachments for babies that carry gene for haemoglobin C, haemoglobin O Arab, haemoglobin E and haemoglobin D

  5. Updated with new statement on use of personal data and copyright.

  6. Updated leaflet artwork.

  7. First published.

Applies to England

Documents

Newborn screening: Your baby carries a gene for Haemoglobin C

HTML

Newborn screening: Your baby carries a gene for Haemoglobin O Arab

HTML

Newborn screening: Your baby carries a gene for Haemoglobin E

HTML

Newborn screening: Your baby carries a gene for Haemoglobin D

HTML

Information for mums and dads: your baby carries a gene for unusual haemoglobin (Bengali)

PDF, 3.19 MB, 16 pages

This file may not be suitable for users of assistive technology.

Request an accessible format
If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

Information for mums and dads: your baby carries a gene for unusual haemoglobin (French)

PDF, 2.47 MB, 9 pages

This file may not be suitable for users of assistive technology.

Request an accessible format
If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

Information for mums and dads: your baby carries a gene for unusual haemoglobin (Urdu)

PDF, 3.2 MB, 16 pages

This file may not be suitable for users of assistive technology.

Request an accessible format
If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

Details

Guidance for parents of babies found to carry gene for Haemoglobin C, Haemoglobin OArab, Haemoglobin E or Haemoglobin D following their newborn blood spot screening test.

This information is available in A4 PDF format (in English) to print out and provide for people who cannot access digital information. For more information, see the ‘order printed leaflets’ section of our guidance on how to access and order leaflets.

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